Today I was interviewed by a producer for CBC’s Out in the Open with Piya Chattopadhyay about my mother’s disease and my experiences caring for her.

This was a dream come true as I always wanted to be affiliated with the CBC, I just did not expect it to be in this capacity.

It was a bittersweet moment. It was wonderful to share my story as it has the possibility of touching people, but it is hard to reveal the intimate experiences of this disease and the choices I have had to make because of it. 

The interview made me feel vulnerable. It was like exposing a part of myself that does not otherwise get to see the light of day.

I realized that we, as caregivers, do not talk enough about what we are made to endure because of this disease. I am not sure if it is because of stigma or because the sheer act of discussing it brings emotions to the surface that are otherwise boiling just underneath.

I hope that through this small act of bravery, I will encourage others to speak up and join the discussion.

Our voices and experiences have the power to make a difference.

There is no time like the present to take action.